Mast Cell Activation Syndrome

As Mast Cell Activation Syndrome is often the cause of MCS, these websites explain MCAS:

https://en.m.wikipedia.org/wiki/Mast_cell_activation_syndrome

http://www.mastcellaware.com/mast-cells/about-mast-cells.html

Having this diagnosis can make getting your fragrance-free needs met easier. Medical people understand that a mast cell disorder is potentially life threatening.

DNA testing

One way is to have it done by 23andme for $199 (Nov 2016) at http://www.23andme.com. It is suggested you use a fake name and date of birth due to eugenics. “The Personal Genome Service isn’t primarily intended to be a medical device. It is a mechanism meant to be a front end for a massive information-gathering operation against an unwitting public.” – Scientific American ManyNaturopathic Doctors are now studying this, so check with a local ND if you want. It helped me greatly.

Dr. Karen Threkel ND in Washington DC 202-244-6661 does this analysis over the phone. You’ll have to see if your insurance will cover any of the appointment. There’s a $250 90 minute intake appointment and then another appointment about the DNA results.

Managing Your Medical Care

Template of Letter for your Doctor to write and sign for your records http://www.healsoaz.org/hospital_access.htm

Chemical Sensitivity Network http://www.csn-deutschland.de/home.htm This site is in German but gives the ICD-10 code for MCS. Chemical Sensitivity (MCS – WHO ICD-10, T78.4). The US now uses the ICD-10.

How to Read Your Lab Tests http://labtestsonline.org/ (I have found this very handy.)

Medical Letter http://secure.medicalletter.org/ (Where many doctors go to learn about medications)

Gluten Free Medication Includes soy, lactose, potato starch, and corn starch.)

Getting Your Records http://chroniccurve.tumblr.com/post/9217829497/be-your-own-advocate-patient-records

Hospitalization Preparation http://www.healsoaz.org/hospital_access.htm

Tips for Anesthetics and Hospitalization for People with Multiple Chemical Sensitivities http://www.immuneweb.org/articles/anesthetics.html

Hesperian Books free download Where There is No Doctor Where Women Have No Doctor and more http://hesperian.org/books-and-resources/

First Aid Kits for MCS http://multiplechemicalsensitivity.wordpress.com/2012/02/27/first-aid-kits-for-people-with-mcs/

Books

The Chronic Illness Workbook by Patricia A Fennell

The Take-Charge Patient: How You Can Get the Best Medical Care by Martine Ehrenclou

Multiple Chemical Sensitivity: A Survival Guide 2nd Ed. by Pamela Reed Gibson PhD (http://www.earthrivebooks.com/excerpts.html has free excerpts)

Living Well With Multiple Chemical Sensitivity by Lisa Bradford

Environmental Medicine Practices

(Please note most of them will help you diagnosis the problem and give information on treatments they suggest. If you already know you have MCS and have found treatments that are helping, please do not obsess about getting an environmental medicine expert consultation. Few with MCS ever do and are living at the same level of quality of life as if they had. The main reason? The ONLY known treatmeant for everyone is safe housing. That is your primary health need. With that your health issues ought to be easier to manage on your own or with an open minded ND, DO or MD with an interest in learning about MCS.)

American Academy of Environmental Medicine http://www.aaemonline.org/

American College of Occupational and Environmental Medicine http://www.acoem.org/

Environmental Health Center http://ehcd.com (Dallas, TX)

Vineyard Personalized Medicine (Martha’s Vineyard, MA) Dr. Lisa Nagy’s Practice http://www.vineyardpersonalizedmedicine.com/Vineyard_Personalized_Medicine/Welcome_to_Vineyard_Personalized_Medicine.html See also http://lisanagy.com/

The Arizona Center for Advanced Medicine http://arizonaadvancedmedicine.com/services/

Click here for a link to the medical journal articles authored by Dr. Crinnion

Toronto Women’s College Hospital http://www.womenshealthmatters.ca (I have heard they test for EHS with a nine month wait list. What good an official diagnosis would do you, I do not know as it will not change the fact that we are bombarded with EMFs. But it may be helpful.)

The Nova Scotia Environmental Health Centre http://www.cdha.nshealth.ca/environmental-health-centre

Australasian College of Nutritional and Environmental Medicine ACNEM http://www.acnem.org

Dental Hygiene

Holistic Dental Network http://www.holisticdentalnetwork.com/

Plaque Off http://www.plaqueoff.com/

Hesperian Where There Is no Dentist http://hesperian.org/books-and-resources/

Oil Pulling http://www.commonsensehome.com/oil-pulling/

Radius Organic Silk Floss http://www.amazon.com/Radius-Organic-Biodegradable-Floss-Plant/dp/B001BBNS7E/ref=pd_sim_sbs_hpc_1

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