General

Films

Chemical Sensitivity, A documentary produced/directed by Alison Johnson Allison Johnson has many excellent films about MCS such as The Toxic Clouds of 9/11: A Looming Health Disaster  http://www.alisonjohnsonmcs.com/

Feels like Home a short film by Natasha MacDonald  http://www.wendyshouse.ca/living-with-mcs.html

Canary in the Mine    http://www.screenaustralia.gov.au/the-screen-guide/t/boy-in-the-bubble-%28canary-in-the-mine%29-1997/12005/     About a 17 year old boy with MCS.

Chemical Kids (in English and Danish) 2001 documentary about chemicals effects on fetuses.  Helle Kongevang is in it.  www.mediarights.org/film/chemical_kids  (Link gets a “page not found” error)

Secondhand Scent: Accommodating People with MCS This 36-minute video is now available from Boston Self Help Center in both VHS and DVD format. Closed captioned. Narrated for access to people with print disabilities. Includes: Interviews with three people who have multiple chemical sensitivity (MCS) Presentations by two doctors, a visiting nurse, and Boston Self Help Center staff about the importance of accommodating people with MCS Cost on a sliding scale: $15 to $25 for individuals $30 to $50 for agencies. For more information, contact Boston Self Help Center, 1534 Tremont Street, Roxbury Crossing, MA 02120; (617) 277-0800

Exposed by Heidrun Holzfeind http://www.exposed.at/filmsynopsis.htm (a film about Katherine, a 35 year old dancer and writer who suffers from Multiple Chemical Sensitivity)

Activism

Activist Materials for MCS http://mcs-america.org/index_files/ReadytoGoMCSActivist.htm (Public Service Announcements and Customizable Letters)

Access to People and Places for Those With Multiple Chemical Sensitivity by Pamela Reed Gibson, Ph.D. http://www.ei-resource.org/articles/multiple-chemical-sensitivity-articl…

International Scientific Declaration on EHS & MCS, Brussels, 2015. Following the 5th Paris Appeal Congress that took place on May 18, 2015, at the Royal Academy of Medicine, Brussels, Belgium. http://www.avaate.org/IMG/pdf/statement_en_definitif.pdf

Invisible Disabilities Association Why Go Fragrance Free? http://invisibledisabilities.org/educate/chemicalsensitivities/whygofragrancefree/

Online resource from ADA Hospitality, Accessible Meetings, Events & Conferences Guide http://www.adahospitality.org/accessible-meetings-events-conferences-guide

Canadian Human Rights Commission The Medical Perspective on Environmental Sensitivities by Margaret E. Sears
http://www.chrc-ccdp.gc.ca/sites/default/files/envsensitivity_en.pdf

Cleaner Indoor Air MCS Activism http://cleanerindoorair.org/access-and-accommodation-resources/mcs-activisim/

How to Be Politically Active when You are Disabled Poor & Pissed Off http://planetthrive.com/2008/05/how-to-be-politically-active-when-youre-disabled-poor-and-pissed-off/ (Connecting to Planet Thrive takes a very long time and some persons have complained that they cannot get a connection.)

MCS activism: How to be represented in an unsafe place http://planetthrive.com/2011/05/e-i-jane/ (Connecting to Planet Thrive takes a very long time and some persons have complained that they cannot get a connection.)

Activist Resources http://planetthrive.com/2009/07/activist-resources/

Fragrance Free Policies From Around the World List http://mn.environmentalillnessnetwork.org/page/scent-free-policies

Care2 petition site http://www.thepetitionsite.com/

How to Effectively Communicate MCS http://www.ei-resource.org/columns/multiple-chemical-sensitivity/getting-to-the-point:-how-to-effectively-communicate-mcs/

How MCS Starts http://www.multiplechemicalsensitivity.org/multiple-chemical-sensitivity-2.php (A good guide for those who do not want to get MCS.)

Woman’s Day magazine Sep 3, 2015 New Study Finds Scented Candles and Air Fresheners Pose Dangerous Health Risks http://www.womansday.com/health-fitness/wellness/news/a51813/new-study-finds-scented-candles-and-air-fresheners-pose-massive-health-risks/

National Geographic March 5, 2015 Chemical Exposure Linked to Billions in Health Care Costs http://news.nationalgeographic.com/news/2015/03/150305-chemicals-endocrine-disruptors-diabetes-toxic-environment-ngfood/

RESCUE PLAN FOR PEOPLE WITH CHEMICAL SENSITIVITY SYNDROMES: THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT! https://afectadasporlosrecortessanitarios.wordpress.com/2015/11/29/good-news-first-rescue-plan-for-people-with-css/  (If they can do it anywhere can.)

The Spoon Theory written by Christine Miserandino http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoo… (A classic guide to getting others to understand chronic illness and its limitations)

Environmental Refugees http://thetruthaboutmcs.blogspot.com/2007/04/environmental-refugees-new-homeless.html

Activist Resources http://planetthrive.com/2009/07/activist-resources/ (Connecting to Planet Thrive takes a very long time and some persons have complained that they cannot get a connection.)

Hesperian Environmental Health Booklets http://hesperian.org/books-and-resources/

Disability and Occupy Blog Carnival, includes essay by person with MCS http://aftergadget.wordpress.com/2011/12/29/disability-occupy-disability-blog-carnival-79/

Free Downloadable Signs and Pamphlets

Cleaner Indoor Air http://cleanerindoorair.org/environmental-illness-resources/brochures-flyers-and-handouts/

By Ishana Ingerman http://www.vtcfids.org/mcs.html

MCS Task Force of New Mexico http://www.chemicalsensitivityfoundation.org/pdf/Multiple-Chemical-Sensitivities-Brochure.pdf

MCS-America offers many different ones in both English and Spanish http://mcs-america.org/index_files/MCSBrochuresPostersSigns.htm

http://mcs-america.org/index_files/ReadytoGoMCSActivist.htm (Public Service Announcements and Customizable Letters)

Massachusetts Department of Public Health http://www.mass.gov/eohhs/docs/dph/environmental/exposure/chemical-sensitivity-english.pdf

For Sale Signs and Pamphlets

“Please Protect Yourself from Household Toxics” http://www.ourlittleplace.com/protect.html

“Let’s Stop Poisoning Our Children” http://www.ourlittleplace.com/poison.html

Posters by Artists with MCS http://www.ctaz.com/~bhima/posters.htm

Invisible Disabilities Association http://www.invisibledisabilities.org/educate/chemicalsensitivities/

Buy Packs from The Chemical Injury Information Network (CIIN)   “Due to copyright and/or tax considerations, you must be a member of CIIN before ordering materials” http://ciin.org/library.html   Membership for fixed income is $15/yr http://ciin.org/member_online.html

The Chemical Injury Information Network (CIIN) is building a library of legal documents and federal government recognition documents to aid chemically injured people with chemical sensitivities in their legal efforts for recognition, accommodation, and fair compensation. Some Packs include medical studies (see individual Pack descriptions). When medical studies are included, they are studies that have been published in well-established peer-reviewed medical journals. Unless otherwise noted, these information packs are set up so the documents do not overlap from one pack to the next. If the packs contain documents that are also listed in the Environmental Access Profiles: List of Back Issues, then those profile documents are noted in the description by their profile number abbreviated as “P.” (Full profile listings are in the Environmental Access Profiles).

o AMERICANS WITH DISABILITIES ACT:
This pack contacts Federal agency government documents which recognize multiple chemical sensitivities (MCS) as a legitimate disability under the Americans with Disabilities Act (ADA). The entities include The entities include the US Dept. of Justice, the US President’s Committee on Employment of People with Disabilities, the US National Council on Disability, the US Dept. of Housing and Urban Development (#P11 and its corresponding document), and the US Equal Employment Opportunity Commission (EEOC). In addition, it has a legal review of how the ADA can best be used to protect the rights of MCS sufferers.
Order No.: 0158-CIIN-xx-055 Cost: $14.75

o US FEDERAL AGENCIES RECOGNITION:
This pack contains Federal agency government documents which recognize multiple chemical sensitivities (MCS) as a legitimate disability under the Americans with Disabilities Act (ADA) and other legislation. The entities include the US Dept. of Justice, the US President’s Committee on Employment of People with Disabilities, the US National Council on Disability, the US Dept. of Housing and Urban Development (#P11 and its corresponding document), and the US Equal Employment Opportunity Commission (EEOC). Also included is a favorable legal de-termination by the EEOC for a workplace accommodation case on behalf of a patient with MCS.
Order No.: 0146-CIIN-xx-044 Cost: $12.00
For the above pack without #P11 and the HUD document:
Order No.: 0146-CIIN-xx-022 Cost: $6.50

o US SOCIAL SECURITY DISABILITY:
This pack contains four Social Security case decisions that were favorable for patients with multiple chemical sensitivities, as well as a copy of the US Social Security Administration’s official policy statement recognizing MCS as a legitimate disability under the term “Environmental Illness,” and a court-ordered SSA memorandum recognizing MCS.
Order No.: 0147-CIIN-xx-060 Cost: $16.00

o US FAIR HOUSING ACT:
Contains two legal case final decisions ruling that the plaintiffs’ MCS must be accommodated under the Fair Housing Act and the US Dept. of Housing and Urban Development recognizes MCS (#P11) as a disability which must be accommodated under the Fair Housing Act:
Order No.: 0145-CIIN-xx-087 Cost: $22.75

o WORKERS’ COMPENSATION:
Contains fifteen legal case final rulings favorable to plaintiffs’ with multiple chemical sensitivities caused by workplace-related chemical exposures. These decisions prove that various state workers’ compensation systems around the country are recognizing MCS as a legitimate disability that should be compensated.
Order No.: 0148-CIIN-xx-195 Cost: $49.75

o WORKERS’ COMPENSATION MEDICAL TREATMENT COVERAGE:
This pack is comprised of three of the favorable Workers’ Compensation legal case decisions (from the above “Workers’ Compensation Pack”) which specifically address payment for medical treatments for patients with MCS under workers’ compensation insurance policies.
Order No.: 0148-CIIN-xx-073 Cost: $19.25

o STATE GOVERNMENT AGENCIES RECOGNITION:
This pack contains state government documents which recognize MCS as a legitimate disability which should be recognized and accommodated. Includes documents from the Washington state Governor’s office; the California state Attorney General’s office; the California Energy Commission; the New Mexico Energy, Minerals and Natural Resources Department; the Connecticut Governor’s Office, and the New Mexico Governor’s Office. Includes three state governor’s proclamations of “Multiple Chemical Sensitivity Awareness Week.”.
Order No.: 0146-CIIN-xx-013 Cost: $4.25

o LOCAL AUTHORITIES RECOGNITION:
This pack contains four documents stating the official policy of MCS recognition and accommodation by the California cities of Oakland, San Francisco, Santa Cruz, Santa Clara, Berkeley, and also the Chicago Transit Authority.
Order No.: 0146-CIIN-xx-033 Cost: $9.25

o ENVIRONMENTAL TOBACCO SMOKE ACCOMMODATION:
These documents are additional documents not included in the “US Federal Agency Recognition Pack” (which also specifically addresses accommodation for tobacco smoke sensitivity). This ETS Accommodation Pack includes a successful legal case under the Fair Employment and Housing Act and the Rehabilitation Act against an employer, and an article published by the American Medical Association urging doctors to aid patients in seeking accommodations, a successful legal case under the ADA for public accommodation in a restaurant, and toxicology book excerpts listing the numerous hazardous chemicals in tobacco smoke and the adverse health effects of those chemicals.
Order No.: 0212-CIIC-xx-041 Cost: $11.25

o SCHOOL ACCOMMODATION:
“Legal Actions and Voluntary Accommodations of Chemical Sensitivity in Schools” is included in this pack. (The article is referenced with numerous medical studies and other pertinent documents which, if desired, can be ordered with the order form at the back of the newsletter.) Also included in this pack is the National PTA’s position statement against the use of pesticides in schools, a legal case won on behalf of a student chemically injured during a science lab, and the Halton Board of Education “Environmental Hypersensitivities Resource Document” and student accommodation plan, two other school accommodation plans, and accommodation and recognition policies for Evergreen State College, the U. of Minnesota Disability Services, and the New Mexico Dept. of Education..
Order No.: 0123-CIIN-xx-074 Cost: $19.50

o HOSPITALS AND MEDICAL FACILITIES ACCOMMODATION:
This pack includes the official chemical sensitivity accommodation policies of two hospitals, a report by the New York State Dept. of Law Attorney General’s office warning of the hazards of pesticide use in hospitals and recommending that nontoxic alternatives be used for pest control (with examples of successful hospital pest control programs utilizing alternatives to pesticides). Also included are the two back issues of Medical & Legal Briefs from the series on hospital hazards and accommodations (Vol. 1 No. 6 and Vol. 2 No. 1). The extensive hospital articles are referenced with numerous medical studies and other pertinent documents which, if desired, can be ordered with the order form at the back of the newsletter.
Order No.: 0218-CIIN-xx-047 Cost: $12.75

o PERFUME TOXICITY:
This pack includes the “best” of the medical studies that address perfume hazards other than skin problems (6 studies), including the toxicology study by Anderson Labs. It also includes the extensively researched and referenced three-part series on “Perfume Toxicity, Sensitivity, Accommodation and Disability” published in Medical & Legal Briefs (Vol. 4 No. 1, Vol. 4 No. 2, and Vol. 4 No. 3). The articles contain a complete medical and legal review to date. If desired, the medical studies and other documents summarized in the series can be ordered with the order form at the back of the newsletter.
Order No.: 0216-CIIN-xx-060 Cost: $16.00

o FORMALDEHYDE SENSITIVITY:
This pack provides an overview of this ubiquitous chemical. Includes toxicology book excerpts listing the numerous building and consumer products that contain formaldehyde, a US Dept. of Housing and Urban Development final rule which warns some people are especially sensitive to formaldehyde and that no safe exposure level can be established for those people, a health department fact sheet, a US Consumer Product Safety Commission Consumer Alert, a legal case won on behalf of a doctor who became sensitized to formaldehyde and therefore aldehyde compounds (also included in the Workers’ Compensation Pack), and three medical studies.
Order No.: 0260-CIIN-xx-055 Cost: $14.75
For the above Pack without the workers’ comp case:
Order No.: 0260-CIIN-xx-040 Cost: $11.00

o OBJECTIVE EVIDENCE OF INJURY:
In order to win a case in court, the chemically injured plaintiff must have objective evidence of injury. Just stating that a person has MCS or is sensitive to chemicals is not enough if evidence of impairment isn’t provided along with that claim. This is why objective medical testing is so important in these cases. The more evidence of injury, the more convincing the case. There are numerous medical studies address-ing the various tests that are providing objective evidence of injury in patients with chemical sensitivities. This pack provides a select overview of those studies taken from the “Environmental Access Profiles List of Back Issues.” (See that list for a more extensive compilation.) This selection includes the choice of ordering only the profiles, or ordering both the profiles and their corresponding medical studies. The profiles provide the full reference and concisely summarize the studies, pull out the main quotes, and show how the information can be used. When ordered along with their corresponding studies, the price of each profile is reduced to only 25¢. This Pack includes P8, P16, P17, P18, P19, P20, P24, P25, P33, P35, P44, P50, P53 and the corresponding medical studies to the preceding profiles. Also included is a list of Mayo Clinic lab tests that can be conducted by mail from anywhere in the US mainland and parts of Canada.
For the Profiles only:
Order No.: 0133-CIIN-xx-028 Cost: $8.00
For the Medical Studies, Profiles, and Mayo List:
Order No.: 0113-CIIN-xx-216 Cost: $55.00

o COUNTERACTING PSYCHOLOGICAL CLAIMS AS ETIOLOGY FOR MCS:
The most essential way to counteract claims that a patient’s illness is psychologically induced is through objective evidence of injury (see Objective Evidence of Injury Pack). Beyond that, this pack contains articles and studies by a clinical psychologist at Johns Hopkins University. These studies evaluate the anti-MCS studies (including Abba Terr’s) and find them all to be seriously flawed, and explain why the commonly used psychological test, the MMPI, is not an appropriate test for patients with chemical injury/MCS because it automatically scores physical symptoms as psychological. These articles are also found as P1, P34, and their corresponding studies in the Environmental Access Profiles: List of Back Issues.
Order No.: 0112-CIIN-xx-039 Cost: $12.75

Films

Chemical Sensitivity, A documentary produced/directed by Alison Johnson Allison Johnson has many excellent films about MCS such as The Toxic Clouds of 9/11: A Looming Health Disaster  http://www.alisonjohnsonmcs.com/

Feels like Home a short film by Natasha MacDonald  http://www.wendyshouse.ca/living-with-mcs.html

Chemical Kids (in English and Danish) 2001 documentary about chemicals effects on fetuses.  Helle Kongevang is in it.  www.mediarights.org/film/chemical_kids   ( link gets “page not found” error)

Canary in the Mine http://www.screenaustralia.gov.au/the-screen-guide/t/boy-in-the-bubble-%28canary-in-the-mine%29-1997/12005/   VHS PAL (Australia) About a 17 year old boy with MCS.

Secondhand Scent: Accommodating People with MCS This 36-minute video is now available from Boston Self Help Center in both VHS and DVD format. Closed captioned. Narrated for access to people with print disabilities. Includes: Interviews with three people who have multiple chemical sensitivity (MCS) Presentations by two doctors, a visiting nurse, and Boston Self Help Center staff about the importance of accommodating people with MCS Cost on a sliding scale: $15 to $25 for individuals $30 to $50 for agencies. For more information, contact Boston Self Help Center, 1534 Tremont Street, Roxbury Crossing, MA 02120; (617) 277-0800

Exposed by Heidrun Holzfeind http://www.exposed.at/filmsynopsis.htm (a film about Katherine, a 35 year old dancer and writer who suffers from Multiple Chemical Sensitivity)

Funny, You Don’t Look Sick, and Homesick- Living With Multiple Chemical Sensitivities  by Susan Abod, a singer/song writer who developed MCS.  Trailers can be viewed for Funny You don’t Look Sick (2 part trailer) Part 1 Trailer https://www.youtube.com/watch?v=0uqDsCtvWRg and Part 2 Trailer https://www.youtube.com/watch?v=p53gTh0fC0c   Homesick – Living With Multiple Chemical Sensitivity trailer https://www.indiegogo.com/projects/homesick–4#/   DVD’s can be purchased for $19.95 plus $9.95 shipping each at her website  http://susanabod.com/films/  Check out other tabs on her website for her music.

Books

People and Permaculture by Looby MacNamara

Multiple Chemical Sensitivity: A Survival Guide 2nd Ed. by Pamela Reed Gibson PhD

The Dispossessed: Living with Multiple Chemical Sensitivities by Rhonda Zwillinger

Allison Johnson’s Website http://www.alisonjohnsonmcs.com/ Books and film about Person Living with MCS, 9/11 First Responders and Gulf War Syndrome

Living Well With Multiple Chemical Sensitivity by Lisa Bradford

The Ragged Edge: The Disability Experience

No Pity: People with Disability Forging a New Civil Rights Movement by Joseph P Shapiro

Educating Medical Staff about MCS

Online resource from ADA Hospitality, Accessible Meetings, Events & Conferences Guide http://www.adahospitality.org/accessible-meetings-events-conferences-guide

Canadian Human Rights Commission The Medical Perspective on Environmental Sensitivities by Margaret E. Sears
http://www.chrc-ccdp.gc.ca/sites/default/files/envsensitivity_en.pdf

International Scientific Declaration on EHS & MCS, Brussels, 2015. Following the 5th Paris Appeal Congress that took place on May 18, 2015, at the Royal Academy of Medicine, Brussels, Belgium. http://www.avaate.org/IMG/pdf/statement_en_definitif.pdf

Invisible Disabilities Association Why Go Fragrance Free? http://invisibledisabilities.org/educate/chemicalsensitivities/whygofragrancefree/

Chemical Sensitivity Network http://www.csn-deutschland.de/home.htm This site is in German but gives the German ICD-10 code for MCS. Chemical Sensitivity (MCS – WHO ICD-10, T78.4). If you have a decent doctor, ask them to code this in your chart, no matter in which nation you reside.

MCS Scientific Studies http://mcs-america.org/index_files/MCSScientificStudies.htm

Selected Bibliography of Studies and Articles on Chemical Sensitivity Published in Peer-Reviewed Journals    http://www.chemicalsensitivityfoundation.org/chemical-sensitivity-research_bibliography.html

IL NET an ILRU/NCIL National Training and Technical Assistance Project Understanding & Accommodating MCS https://safecanarynest.org/559-2/

Environmental Health Network http://www.ehnca.org

The Methylation Cycle http://drmyhill.co.uk/wiki/CFS_-_The_Methylation_Cycle

James Madison University MCS Research Team http://www.mcsresearch.net

Fragrance Chemicals http://www.noharm.org/us_canada/issues/toxins/cleaners_pesticides/fragrances.php

Guide for Hospital Staff http://www.ctaz.com/~bhima/hospital.htm

Cleaning Chemicals in Hospitals http://www.noharm.org/lib/downloads/cleaners/Cleaning_Chem_in_Hosp.pdf

Massachusetts Nurses Association http://www.massnurses.org/health-and-safety/articles/chemical-exposures

Letter for Medical Providers asking to them to go fragrance free and why http://cleanerindoorair.org/campaigns/fragrance-free-medical/letter-to-medical-facilities/

Risks to Asthma Posed by Indoor Health Care Environments http://www.noharm.org/lib/downloads/cleaners/Risks_to_Asthma_Guide.pdf

Tips for Anesthetics and Hospitalization for People with Multiple Chemical Sensitivities http://www.immuneweb.org/articles/anesthetics.html

Tips for First Responders http://www.vtcfids.org/images/ishana3responsetips.pdf (Send copies of this to your fire fighters and other EMS providers)

Health Care without Harm http://www.noharm.org/all_regions/issues/environment/

Online Articles by Dr Rea a thoracic and cardiovascular surgeon with a strong passion for the environmental aspects of health and disease and founder and director of the Environmental Health Center (EHC-D) http://planetthrive.com/2011/10/throat-constriction/ (Connecting to Planet Thrive takes a very long time and some persons have complained that they cannot get a connection.)

Chemical Injury Information Network http://ciin.org/library.html

Dr Martin L Pall http://www.mcs-america.org/pall.pdf

The Role of the Brain and Mast Cells in MCS by Gunnar Heuser, MD, PhD, FACP http://www.tldp.com/issue/210/roleoftheb.htm

William J. Meggs, MD, PHD https://en.wikipedia.org/wiki/William_Joel_Meggs

Austrian Medical Association Guidelines for the Diagnosis and Treatment of EMF-Related Health Problems and Illnesses  http://www.magdahavas.com/austrian-medical-association-guidelines-to-diagnosing-and-treating-patients-with-electrohypersensitivity/  and  http://freiburger-appell-2012.info/media/EMF%20Guideline%20OAK-AG%20%202012%2003%2003.pdf

Why Can’t I Get Better? By Dr Horowitz (Although about Lyme disease, it has the only in depth, scientific, medical information I’ve found about why MCS happens, the right way to do tests and treatment. Just for understanding the liver detoxification pathways it’s worth owning.)

Buy Packs from The Chemical Injury Information Network (CIIN)   “Due to copyright and/or tax considerations, you must be a member of CIIN before ordering materials” http://ciin.org/library.html Membership for fixed income is $15/yr http://ciin.org/member_online.html

The Chemical Injury Information Network (CIIN) is building a library of legal documents and federal government recognition documents to aid chemically injured people with chemical sensitivities in their legal efforts for recognition, accommodation, and fair compensation. Some Packs include medical studies (see individual Pack descriptions). When medical studies are included, they are studies that have been published in well-established peer-reviewed medical journals. Unless otherwise noted, these information packs are set up so the documents do not overlap from one pack to the next. If the packs contain documents that are also listed in the Environmental Access Profiles: List of Back Issues, then those profile documents are noted in the description by their profile number abbreviated as “P.” (Full profile listings are in the Environmental Access Profiles).

o AMERICANS WITH DISABILITIES ACT:
This pack contacts Federal agency government documents which recognize multiple chemical sensitivities (MCS) as a legitimate disability under the Americans with Disabilities Act (ADA). The entities include The entities include the US Dept. of Justice, the US President’s Committee on Employment of People with Disabilities, the US National Council on Disability, the US Dept. of Housing and Urban Development (#P11 and its corresponding document), and the US Equal Employment Opportunity Commission (EEOC). In addition, it has a legal review of how the ADA can best be used to protect the rights of MCS sufferers.
Order No.: 0158-CIIN-xx-055 Cost: $14.75

o US FEDERAL AGENCIES RECOGNITION:
This pack contains Federal agency government documents which recognize multiple chemical sensitivities (MCS) as a legitimate disability under the Americans with Disabilities Act (ADA) and other legislation. The entities include the US Dept. of Justice, the US President’s Committee on Employment of People with Disabilities, the US National Council on Disability, the US Dept. of Housing and Urban Development (#P11 and its corresponding document), and the US Equal Employment Opportunity Commission (EEOC). Also included is a favorable legal de-termination by the EEOC for a workplace accommodation case on behalf of a patient with MCS.
Order No.: 0146-CIIN-xx-044 Cost: $12.00
For the above pack without #P11 and the HUD document:
Order No.: 0146-CIIN-xx-022 Cost: $6.50

o HOSPITALS AND MEDICAL FACILITIES ACCOMMODATION:
This pack includes the official chemical sensitivity accommodation policies of two hospitals, a report by the New York State Dept. of Law Attorney General’s office warning of the hazards of pesticide use in hospitals and recommending that nontoxic alternatives be used for pest control (with examples of successful hospital pest control programs utilizing alternatives to pesticides). Also included are the two back issues of Medical & Legal Briefs from the series on hospital hazards and accommodations (Vol. 1 No. 6 and Vol. 2 No. 1). The extensive hospital articles are referenced with numerous medical studies and other pertinent documents which, if desired, can be ordered with the order form at the back of the newsletter.
Order No.: 0218-CIIN-xx-047 Cost: $12.75

o PERFUME TOXICITY:
This pack includes the “best” of the medical studies that address perfume hazards other than skin problems (6 studies), including the toxicology study by Anderson Labs. It also includes the extensively researched and referenced three-part series on “Perfume Toxicity, Sensitivity, Accommodation and Disability” published in Medical & Legal Briefs (Vol. 4 No. 1, Vol. 4 No. 2, and Vol. 4 No. 3). The articles contain a complete medical and legal review to date. If desired, the medical studies and other documents summarized in the series can be ordered with the order form at the back of the newsletter.
Order No.: 0216-CIIN-xx-060 Cost: $16.00

o FORMALDEHYDE SENSITIVITY:
This pack provides an overview of this ubiquitous chemical. Includes toxicology book excerpts listing the numerous building and consumer products that contain formaldehyde, a US Dept. of Housing and Urban Development final rule which warns some people are especially sensitive to formaldehyde and that no safe exposure level can be established for those people, a health department fact sheet, a US Consumer Product Safety Commission Consumer Alert, a legal case won on behalf of a doctor who became sensitized to formaldehyde and therefore aldehyde compounds (also included in the Workers’ Compensation Pack), and three medical studies.
Order No.: 0260-CIIN-xx-055 Cost: $14.75
For the above Pack without the workers’ comp case:
Order No.: 0260-CIIN-xx-040 Cost: $11.00

o COUNTERACTING PSYCHOLOGICAL CLAIMS AS ETIOLOGY FOR MCS:
The most essential way to counteract claims that a patient’s illness is psychologically induced is through objective evidence of injury (see Objective Evidence of Injury Pack). Beyond that, this pack contains articles and studies by a clinical psychologist at Johns Hopkins University. These studies evaluate the anti-MCS studies (including Abba Terr’s) and find them all to be seriously flawed, and explain why the commonly used psychological test, the MMPI, is not an appropriate test for patients with chemical injury/MCS because it automatically scores physical symptoms as psychological. These articles are also found as P1, P34, and their corresponding studies in the Environmental Access Profiles: List of Back Issues.
Order No.: 0112-CIIN-xx-039 Cost: $12.75

Books

Healthier Hospitals by Toni Temple

Educating Social Workers & Therapists

IL NET an ILRU/NCIL National Training and Technical Assistance Project Understanding & Accommodating MCS https://safecanarynest.org/559-2/

Environmental Health Network http://www.ehnca.org

Online resource from ADA Hospitality, Accessible Meetings, Events & Conferences Guide http://www.adahospitality.org/accessible-meetings-events-conferences-guide

Access to People and Places for Those With Multiple Chemical Sensitivity by Pamela Reed Gibson, Ph.D. http://www.ei-resource.org/articles/multiple-chemical-sensitivity-articl…

(US) Housing and Urban Development MCS Statement http://fairhousing.com/include/media/pdf/mcsd.pdf

International Scientific Declaration on EHS & MCS, Brussels, 2015. Following the 5th Paris Appeal Congress that took place on May 18, 2015, at the Royal Academy of Medicine, Brussels, Belgium. http://www.avaate.org/IMG/pdf/statement_en_definitif.pdf

Invisible Disabilities Association Why Go Fragrance Free? http://invisibledisabilities.org/educate/chemicalsensitivities/whygofragrancefree/

US Department of Housing and Urban Development (HUD)
Office of Fair Housing and Equal Opportunity
(602) 379-4461
Request the MCS Information Packet, which includes citations and descriptions of helpful recent legal decisions regarding safe housing.
U.S. Department of Education http://www.ed.gov/policy/speced/guid/rsa/im/2002/im-02-04.pdf

Social Security Administration DI 24515.064 Evaluation Of Specific Issues — Environmental Illness (1996) https://secure.ssa.gov/apps10/poms.nsf/lnx/0424515064!opendocument

(Canada) Centre for Equality Rights in Accommodation http://www.equalityrights.org/cera/?page_id=674

The CDC and MCS http://lindasepp.wordpress.com/2012/04/15/the-cdc-and-mcs/

Environmental Refugees http://thetruthaboutmcs.blogspot.com/2007/04/environmental-refugees-new-homeless.html

Fragrance Chemicals http://www.noharm.org/us_canada/issues/toxins/cleaners_pesticides/fragrances.php

Buy Packs from The Chemical Injury Information Network (CIIN)   “Due to copyright and/or tax considerations, you must be a member of CIIN before ordering materials” http://ciin.org/library.html Membership for fixed income is $15/yr http://ciin.org/member_online.html

The Chemical Injury Information Network (CIIN) is building a library of legal documents and federal government recognition documents to aid chemically injured people with chemical sensitivities in their legal efforts for recognition, accommodation, and fair compensation. Some Packs include medical studies (see individual Pack descriptions). When medical studies are included, they are studies that have been published in well-established peer-reviewed medical journals. Unless otherwise noted, these information packs are set up so the documents do not overlap from one pack to the next. If the packs contain documents that are also listed in the Environmental Access Profiles: List of Back Issues, then those profile documents are noted in the description by their profile number abbreviated as “P.” (Full profile listings are in the Environmental Access Profiles).

o OBJECTIVE EVIDENCE OF INJURY:
In order to win a case in court, the chemically injured plaintiff must have objective evidence of injury. Just stating that a person has MCS or is sensitive to chemicals is not enough if evidence of impairment isn’t provided along with that claim. This is why objective medical testing is so important in these cases. The more evidence of injury, the more convincing the case. There are numerous medical studies address-ing the various tests that are providing objective evidence of injury in patients with chemical sensitivities. This pack provides a select overview of those studies taken from the “Environmental Access Profiles List of Back Issues.” (See that list for a more extensive compilation.) This selection includes the choice of ordering only the profiles, or ordering both the profiles and their corresponding medical studies. The profiles provide the full reference and concisely summarize the studies, pull out the main quotes, and show how the information can be used. When ordered along with their corresponding studies, the price of each profile is reduced to only 25¢. This Pack includes P8, P16, P17, P18, P19, P20, P24, P25, P33, P35, P44, P50, P53 and the corresponding medical studies to the preceding profiles. Also included is a list of Mayo Clinic lab tests that can be conducted by mail from anywhere in the US mainland and parts of Canada.
For the Profiles only:
Order No.: 0133-CIIN-xx-028 Cost: $8.00
For the Medical Studies, Profiles, and Mayo List:
Order No.: 0113-CIIN-xx-216 Cost: $55.00

o SCHOOL ACCOMMODATION:
“Legal Actions and Voluntary Accommodations of Chemical Sensitivity in Schools” is included in this pack. (The article is referenced with numerous medical studies and other pertinent documents which, if desired, can be ordered with the order form at the back of the newsletter.) Also included in this pack is the National PTA’s position statement against the use of pesticides in schools, a legal case won on behalf of a student chemically injured during a science lab, and the Halton Board of Education “Environmental Hypersensitivities Resource Document” and student accommodation plan, two other school accommodation plans, and accommodation and recognition policies for Evergreen State College, the U. of Minnesota Disability Services, and the New Mexico Dept. of Education..
Order No.: 0123-CIIN-xx-074 Cost: $19.50
o US SOCIAL SECURITY DISABILITY:
This pack contains four Social Security case decisions that were favorable for patients with multiple chemical sensitivities, as well as a copy of the US Social Security Administration’s official policy statement recognizing MCS as a legitimate disability under the term “Environmental Illness,” and a court-ordered SSA memorandum recognizing MCS.
Order No.: 0147-CIIN-xx-060 Cost: $16.00

o US FAIR HOUSING ACT:
Contains two legal case final decisions ruling that the plaintiffs’ MCS must be accommodated under the Fair Housing Act and the US Dept. of Housing and Urban Development recognizes MCS (#P11) as a disability which must be accommodated under the Fair Housing Act:
Order No.: 0145-CIIN-xx-087 Cost: $22.75

o WORKERS’ COMPENSATION:
Contains fifteen legal case final rulings favorable to plaintiffs’ with multiple chemical sensitivities caused by workplace-related chemical exposures. These decisions prove that various state workers’ compensation systems around the country are recognizing MCS as a legitimate disability that should be compensated.
Order No.: 0148-CIIN-xx-195 Cost: $49.75

o WORKERS’ COMPENSATION MEDICAL TREATMENT COVERAGE:
This pack is comprised of three of the favorable Workers’ Compensation legal case decisions (from the above “Workers’ Compensation Pack”) which specifically address payment for medical treatments for patients with MCS under workers’ compensation insurance policies.
Order No.: 0148-CIIN-xx-073 Cost: $19.25

o STATE GOVERNMENT AGENCIES RECOGNITION:
This pack contains state government documents which recognize MCS as a legitimate disability which should be recognized and accommodated. Includes documents from the Washington state Governor’s office; the California state Attorney General’s office; the California Energy Commission; the New Mexico Energy, Minerals and Natural Resources Department; the Connecticut Governor’s Office, and the New Mexico Governor’s Office. Includes three state governor’s proclamations of “Multiple Chemical Sensitivity Awareness Week.”.
Order No.: 0146-CIIN-xx-013 Cost: $4.25

o LOCAL AUTHORITIES RECOGNITION:
This pack contains four documents stating the official policy of MCS recognition and accommodation by the California cities of Oakland, San Francisco, Santa Cruz, Santa Clara, Berkeley, and also the Chicago Transit Authority.
Order No.: 0146-CIIN-xx-033 Cost: $9.25

o AMERICANS WITH DISABILITIES ACT:
This pack contacts Federal agency government documents which recognize multiple chemical sensitivities (MCS) as a legitimate disability under the Americans with Disabilities Act (ADA). The entities include The entities include the US Dept. of Justice, the US President’s Committee on Employment of People with Disabilities, the US National Council on Disability, the US Dept. of Housing and Urban Development (#P11 and its corresponding document), and the US Equal Employment Opportunity Commission (EEOC). In addition, it has a legal review of how the ADA can best be used to protect the rights of MCS sufferers.
Order No.: 0158-CIIN-xx-055 Cost: $14.75

o US FEDERAL AGENCIES RECOGNITION:
This pack contains Federal agency government documents which recognize multiple chemical sensitivities (MCS) as a legitimate disability under the Americans with Disabilities Act (ADA) and other legislation. The entities include the US Dept. of Justice, the US President’s Committee on Employment of People with Disabilities, the US National Council on Disability, the US Dept. of Housing and Urban Development (#P11 and its corresponding document), and the US Equal Employment Opportunity Commission (EEOC). Also included is a favorable legal de-termination by the EEOC for a workplace accommodation case on behalf of a patient with MCS.
Order No.: 0146-CIIN-xx-044 Cost: $12.00
For the above pack without #P11 and the HUD document:
Order No.: 0146-CIIN-xx-022 Cost: $6.50

o HOSPITALS AND MEDICAL FACILITIES ACCOMMODATION:
This pack includes the official chemical sensitivity accommodation policies of two hospitals, a report by the New York State Dept. of Law Attorney General’s office warning of the hazards of pesticide use in hospitals and recommending that nontoxic alternatives be used for pest control (with examples of successful hospital pest control programs utilizing alternatives to pesticides). Also included are the two back issues of Medical & Legal Briefs from the series on hospital hazards and accommodations (Vol. 1 No. 6 and Vol. 2 No. 1). The extensive hospital articles are referenced with numerous medical studies and other pertinent documents which, if desired, can be ordered with the order form at the back of the newsletter.
Order No.: 0218-CIIN-xx-047 Cost: $12.75

o PERFUME TOXICITY:
This pack includes the “best” of the medical studies that address perfume hazards other than skin problems (6 studies), including the toxicology study by Anderson Labs. It also includes the extensively researched and referenced three-part series on “Perfume Toxicity, Sensitivity, Accommodation and Disability” published in Medical & Legal Briefs (Vol. 4 No. 1, Vol. 4 No. 2, and Vol. 4 No. 3). The articles contain a complete medical and legal review to date. If desired, the medical studies and other documents summarized in the series can be ordered with the order form at the back of the newsletter.
Order No.: 0216-CIIN-xx-060 Cost: $16.00

o FORMALDEHYDE SENSITIVITY:
This pack provides an overview of this ubiquitous chemical. Includes toxicology book excerpts listing the numerous building and consumer products that contain formaldehyde, a US Dept. of Housing and Urban Development final rule which warns some people are especially sensitive to formaldehyde and that no safe exposure level can be established for those people, a health department fact sheet, a US Consumer Product Safety Commission Consumer Alert, a legal case won on behalf of a doctor who became sensitized to formaldehyde and therefore aldehyde compounds (also included in the Workers’ Compensation Pack), and three medical studies.
Order No.: 0260-CIIN-xx-055 Cost: $14.75
For the above Pack without the workers’ comp case:
Order No.: 0260-CIIN-xx-040 Cost: $11.00

o COUNTERACTING PSYCHOLOGICAL CLAIMS AS ETIOLOGY FOR MCS:
The most essential way to counteract claims that a patient’s illness is psychologically induced is through objective evidence of injury (see Objective Evidence of Injury Pack). Beyond that, this pack contains articles and studies by a clinical psychologist at Johns Hopkins University. These studies evaluate the anti-MCS studies (including Abba Terr’s) and find them all to be seriously flawed, and explain why the commonly used psychological test, the MMPI, is not an appropriate test for patients with chemical injury/MCS because it automatically scores physical symptoms as psychological. These articles are also found as P1, P34, and their corresponding studies in the Environmental Access Profiles: List of Back Issues.
Order No.: 0112-CIIN-xx-039 Cost: $12.75

Brochures

MCS Task Force of New Mexico http://www.chemicalsensitivityfoundation.org/pdf/Multiple-Chemical-Sensitivities-Brochure.pdf

MCS-America offers many different ones in both English and Spanish http://mcs-america.org/index_files/MCSBrochuresPostersSigns.htm

Massachusetts Department of Public Health http://www.mass.gov/eohhs/docs/dph/environmental/exposure/chemical-sensitivity-english.pdf

Film

Chemical Sensitivity A documentary produced/directed by Alison Johnson  https://www.youtube.com/watch?v=2ZF37YmrpYs

Secondhand Scent: Accommodating People with MCS This 36-minute video is now available from Boston Self Help Center in both VHS and DVD format. Closed captioned. Narrated for access to people with print disabilities. Includes: Interviews with three people who have multiple chemical sensitivity (MCS) Presentations by two doctors, a visiting nurse, and Boston Self Help Center staff about the importance of accommodating people with MCS Cost on a sliding scale: $15 to $25 for individuals $30 to $50 for agencies. For more information, contact Boston Self Help Center, 1534 Tremont Street, Roxbury Crossing, MA 02120; (617) 277-0800

Exposed by Heidrun Holzfeind http://www.exposed.at/filmsynopsis.htm (a film about Katherine, a 35 year old dancer and writer who suffers from Multiple Chemical Sensitivity)

Books

Multiple Chemical Sensitivity: A Survival Guide 2nd Ed. by Pamela Reed Gibson PhD (There is a chapter for therapists to read.)

Living Well With Multiple Chemical Sensitivity by Lisa Bradford

Understanding Multiple Chemical Sensitivity: Causes, Effects, Personal Experiences and Resources by Els Valkenburg

Living with Multiple Chemical Sensitivity: Narratives of Coping by Gail McCormick

The Dispossessed: Living with Multiple Chemical Sensitivities by Rhonda Zwillinger

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