By   Armi Dee

Written and Researched by Heather – with more added monthly!


Advice to MCS Newbies

Disaster Preparedness with MCS

MCS in Vermont

Guide for Friends/Family

Legal Support

Resources Table of Contents page. This is the section that will probably be used the most, so I suggest bookmarking this Resources Table of Contents page. From it you can access these pages of online information and shopping links:

  • General MCS Information
  • Health Care Related Topics
  • Medical Research
  • Treatments Recommended by Canaries
  • Electromagnetic Sensitivity
  • Ink Intolerance & Toxic Dangers of Art Supplies
  • Housing/Camping & Automotive
  • House Care & Furnishings
  • Cleaning, Food Related Topics
  • Clothing, Shoes, Masks & Fabric/Yarn
  • Emotional Coping, Free Online Fun & Sensory Defensiveness
  • Socializing with MCS
  • Romance & Sex
  • Healthy Communication & Community Building
  • Activism & Educating Others
  • Legal Issues & Disability Rights & Employment with MCS
  • Schools, Children & Parenting
  • MCS Community & Helpful Blogs by Canaries
  • General Environmental/Poison Information

What is MCS? From the amazing Chemical Injury Information Network, written by long-term activist Cynthia Wilson. Although I posted it here due to hackers destroying MCS websites, please visit CIIN for this essay of the history of MCS research.

Please note that MCS often is a symptom of Lyme disease and Chrome Fatigue Disorder/ME. Mast Cell Activation Syndrome may be the cause of MCS especially if you had or have Lyme disease, auto-immune illnesses like RA, MS, etc., fibromyalgia, Chronic Fatigue Syndrome/ME, asthma, type 2 diabetes, hypoglycemia, generalized anxiety disorder, nonallergic/vasomotor rhinusitis, allergies, sensitive skin, fertility issues, autism, migraines, Irritable Bowel Syndrome, Celiac disease, brain fog, and many other “odd” seemingly unconnected problems. With MCAS, anything inhaled, ingested, or touched (a trigger) can have any medical (including psychological)  reaction. Every person has different triggers and reactions, explaining why the symptoms are multi-system.

Mast cells produce many “mediators” that tell the body how to respond. With MCAS, the mast cells become hyper-reactive to certain triggers. Mast cells especially line the skin, mouth, throat, stomach, intestines, anus, sinuses, lungs, and cross the brain-blood barrier. The mediators cause changes in the immune, neurological, digestive and endocrine systems. Reactions vary widely, but the most common (49%) is cognitive impairment. Fragrance is a well documented trigger and it is easier to be taken seriously at the Emergency Department saying “mast cell activation syndrome” than “multiple chemical sensitivity” which may advance the quality of our lives.

Learn more about MCAS, mast cells, and under Resources at the end of the Medical Research section.

Also written by Heather:

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